Ethical Guidelines of the Alzheimer Society of Canada

John D. Fisk, A. Dessa Sadovnick, Carole A. Cohen, Serge Gauthier,

John Dossetor, Astrid Eberhart and Linda LeDuc

Abstract: Alzheimer's disease raises numerous ethical issues which vary and evolve over the course of the illness. In recognition of the need for ongoing discussion of these issues, the Alzheimer Society of Canada established a Task Force on Ethics in 1995. Through a process of "discourse ethics" and consultation on a national scale, the Task Force produced a series of guidelines dealing with the issues of: communicating the diagnosis, driving, respecting individual choice, quality of life, participation in research, genetic testing, the use of restraints, and end-of-life care. This manuscript presents a summary of these guidelines as well as a summary of the ideas on which they were based. It was the hope of the Society that the publication of these guidelines will serve to facilitate discussion of the ethics of care of those with Alzheimer's disease.

Can. J. Neurol. Sci. 1998; 25: 242-248